Can kids with craniosynostosis play sports?

OBJECTIVE Craniosynostosis (CS) affects about 1 in 2500 infants and is predominantly treated by surgical intervention in infancy. Later in childhood, many of these children wish to participate in sports. However, the safety of participation is largely anecdotal and based on surgeon experience.

Can craniosynostosis cause behavior problems?

In unilateral coronal craniosynostosis, problems with intelligence, speech, learning, or behavior have been reported in 52% and 61% of children affected on the left and right sides, respectively6).

Can kids with craniosynostosis live a normal life?

Key points about craniosynostosis Craniosynostosis usually occurs by chance. The first and only symptoms are usually changes in the shape of the baby’s head and face. Surgery is usually the recommended treatment. Most children who have surgery early live healthy lives.

Can craniosynostosis cause retardation?

Chi-square analysis showed no significant differences between rates of retardation or learning disorders based on surgical status. Conclusions: Most children with nonsyndromic craniosynostosis obtain developmental quotients within the normal range in infancy.

Does craniosynostosis qualify for disability?

If you or your dependent(s) are diagnosed with Craniosynostosis-Hydrocephalus-Arnold-Chiari Malformation Type I-Radioulnar Synostosis Syndrome and experience any of these symptoms, you may be eligible for disability benefits from the U.S. Social Security Administration.

Can craniosynostosis cause intellectual disability?

Craniosynostosis leads to abnormal craniofacial contour and results in a long narrow head, widely spaced eyes, high vault palatine, and low set ears. In addition to intellectual disability, congenital heart defects and muscular hypotonia in early infancy can be observed.

Can craniosynostosis cause learning disabilities?

In 2015, Dr. Matthew Speltz’s team published results indicating that school-age children with the most common form of craniosynostosis are more likely to suffer developmental delays and learning problems than children who don’t have the disorder.

What can you claim DLA for a child?

You can get DLA if at least one of the following applies to your child:

  • they need a lot more care, attention or supervision than a child of the same age who isn’t disabled.
  • they have difficulty walking or getting around outdoors in unfamiliar places, compared to a child of the same age who isn’t disabled.

Is a birth defect considered a disability?

Yes, many birth defects are listed on the SSA’s list of impairments, which includes: Low birth weight and failure to thrive. Respiratory disorders. Disorders of the cardiovascular, musculoskeletal, digestive, blood, and skin.

What are the long term effects of craniosynostosis?

If left untreated, craniosynostosis can lead to serious complications, including: Head deformity, possibly severe and permanent. Increased pressure on the brain. Seizures.

Does craniosynostosis affect brain development?

Craniosynostosis is a condition in which the sutures in a child’s skull close too early, causing problems with head growth. Premature closure of the sutures may also cause the pressure inside of the head to increase, which can affect brain development.

Where can I get craniosynostosis treatment on the NHS?

There are 4 specialist NHS centres for craniosynostosis: Alder Hey Children’s Hospital in Liverpool Birmingham Children’s Hospital Great Ormond Street Hospital in London John Radcliffe Hospital in Oxford

What are the causes of craniosynostosis?

Craniosynostosis causes are, for the most part, unknown as the condition is so rare. However, the condition can be related to particular genetic disorders, which is why craniosynostosis is divided into two types based on this factor: 1. Nonsyndromic craniosynostosis

What is a post-op craniosynostosis helmet?

A post-op craniosynostosis helmet is essential for allowing the head to recover and grow back to a regular shape as without it the head could remain in the deformed shape.

How is craniosynostosis diagnosed?

Craniosynostosis diagnosis involves a paediatrician, neurosurgeon or relevant specialist examining a baby’s head, and each process will be different dependant on the suspected type of craniosynostosis a baby has. The craniosynostosis diagnosis may include the following process depending on these relevant factors: